Optimal Care for Duchenne Muscular Dystrophy: Certified Centers and Registry Program

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Seeking Optimal Care: Certified Duchenne Care Centers

Every individual living with Duchenne muscular dystrophy DMD deserves the best possible care. It is essential for families to understand who provides this care and what centers deliver standardized, optimal services aligned with established guidelines.

The Parent Project Muscular Dystrophy's certified Duchenne care center program ensure that all participating centers adhere to stringent standards of clinical excellence as outlined in the Centers for Disease Control and Prevention CDC Care Considerations. This certification process is designed to:

1. Reduce Variability: Minimize inconsistencies in care provided across different institutions.

2. Accessible and Avlable Care: Ensure comprehensive services are easily accessible and consistently avlable for everyone living with Duchenne.

3. Enhancing Clinical Research: Improve the quality of clinical trial outcomes by standardizing care, thus accelerating advancements towards therapies.

All certified centers must meet predefined criteria encompassing standardized clinical services and care practices that align with these guidelines. This ensures patients receive evidence-based care tlored to their needs throughout their lifespan.

Navigating Certified Centers

Utilize our interactive map or the list below to explore centers that have met these stringent standards:

• Map Interactive Guide

• Choose a Certified Care Center List

Providing Feedback on Your Experience

Patient and caregiver feedback plays a critical role in mntning high-quality care standards. By updating your detls in The Duchenne Registry or completing our Clinical Experiences Survey, you help us sustn and refine the care services offered.

Join The Duchenne Registry

Complete Clinical Experiences Survey to share your insights.

English Version: Linkhttp:dmeffects.comclinical-experience-survey

Spanish Version: Linkhttp:dmeffects.comes-clinical-experience-survey

Your responses will empower us in continuously ensuring that the care and services provided are of exceptional quality.

Collaboration with Leading Institutions

June 20, 2023

• PPMD Announces New Center: Norton Children’s Hospital in Louisville, KY is recognized as part of our Certified Duchenne Care Center CDCC Program. This milestone underscores the program's expansion and commitment to providing superior care.

June 16, 2023

• PPMD Certifies Boston Children's Hospital: As we expand our renowned CDCC Program, Boston Children’s Hospital joins as a certified center. This significant partnership advances our efforts in delivering top-tier care.

April 19, 2023

• CDCC Program Update: The Parent Project Muscular Dystrophy team reflects on the program's impact for 2022, focusing on how it contributes to improved healthcare delivery and advocacy for individuals living with Duchenne muscular dystrophy.

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