Boston Children's Hospital: Comprehensive Care for Children with Medical Complexity

Comprehensive Care for Children with Medical Complexity at Boston Children's Hospital

At Boston Children's Hospital, our division of General Pediatrics strives to provide unparalleled care and support to approximately 4,000 children dealing with medical complexity CMC. The condition these children face involves lifelong, life-limiting complex chronic conditions that affect multiple organ systems. They often require assistance from a range of treatments including medications, medical equipment, and supplies for optimal health management.

Our dedicated team consists of general pediatricians, developmentalbehavioral specialists, registered nurses, advanced practice nurses, social workers, case managers, schedulers, and other healthcare professionals who specialize in caring for children with medical complexities.

Our patient-centered approach includes:

• Chronic disease management

• Treatment of acute illnesses

• Proactive care planning involving shared decision-making

• Management of polypharmacy taking multiple medications and durable medical equipment supplies

• Care coordination across specialists and interdisciplinary healthcare professionals

We provide a wide array of services to meet the comprehensive needs of these children:

Rnbow Program:

A patient-centered medical home that provides comprehensive primary care services, including well-child visits, immunizations, care coordination, and urgent care.

Complex Care Service:

A consultative health home for children with existing, community-based primary care providers requiring specialized attention.

Multi-Disciplinary Clinics Centers:

Our general and developmental pediatricians work alongside medical and surgical specialists in clinics tlored to the needs of children with conditions such as cerebral palsy, spina bifida, craniofacial issues, and aerodigestive disorders.

Inpatient Hospitalist Service:

A dedicated team for addressing acute inpatient needs specific to children with medical complexity.

Home Care Visits:

Post-discharge home visits provided by complex care nurses ensuring a safe transition from hospital back into the community.

Intrathecal Baclofen Pump Program:

A comprehensive program involving neurosurgery providers who install and manage intrathecal baclofen pumps for managing musculoskeletal spasticity in children.

Complex Spine Team:

An integrated program with anesthesiologists and orthopedic surgeons to prepare children for elective spine surgeries, providing guidance on shared decision-making regarding surgery.

Telehealth Services:

Virtual visits for both new and established patients dealing with medical complexity.

These initiatives at Boston Children's Hospital m to enhance the quality of life and overall care experience for our young patients by providing specialized support tlored to their unique needs.

For any questions or appointment requests, please contact:

• Complex Care Service: +1 617 355-6162

• Rnbow Program: +1 617 355-7701

• Fax for Complex Care Service: +1 617 730-0621

• Fax for Rnbow Program: +1 617 730-0505

Boston Children's Hospital is dedicated to advancing pediatric healthcare and ensuring every child receives the care they need in a compassionate, supportive environment. Visit us at our location at:

Boston Children’s Hospital

Address: 300 Longwood Avenue

City: Boston

State: Massachusetts

ZIP Code: 02115

For any additional inquiries or information on how to schedule an appointment, please call +1 617 355-6000.

Boston Children's Hospital strives for excellence and innovation in pediatric healthcare. We invite you to experience the difference our specialized programs make in the lives of our patients.

Our commitment exts beyond medical care; we support families through every step of their journey with resources, guidance, and a compassionate community.

Let us partner with your family as your child navigates their unique health challenges with confidence and hope.

Version: 2.5

Publication Year: 2024
This article is reproduced from: https://www.childrenshospital.org/programs/care-children-medical-complexity

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